10th October 2015: Vyara (2)

 

Dear friend, I don’t like you

Why do you have to come around and stay?

It’s a surprise, you are not invited

And yet you come to stay anyway.

 

I have new friends now, a new life

Can’t you see I’ve been getting on so great?

I didn’t think so soon I’d see you

It’s a nightmare but I am awake

 

Why do you force me to play with you?

I have better things to do

I’m excited in this moment

But your shadow makes me blue.

 

I don’t have the patience to stay with you

You spend all your time in bed

I was doing so well before I saw you

But you want to cry and sink in death instead

 

I was so excited that I tasted living

I have plans of things I want to do

Could you kindly pick yourself up and get moving

I told you that we are through.

 

Dear depression, I know you’re real

Teaching me things along the way

I know all I have to do is to love you

To release us from this decay

 

But you do make me tired

A splitting headache, you are quick sand

Coming along unexpected

And pulling me down, away from land.

 

If you are my guest please stay shorter

I don’t like when you visit me

And if you promise not stay longer

I will look after you as best can be.

 

You know I have great hopes

Of all the things I can do.

If you choose to stay here longer

I guess I have no choice than to still love you.

 

I know you mean no harm

You are a natural effect

I hope I can understand you

And make peace with you instead.

 

But how can we live together,

I feel impatient, sad, upset

I stick feel like I don’t know you

You are so easy to reject.

 

A deep sigh, I guess I need to

Get used to that you’re here to stay.

Put your feet up, I’ll make a cuppa

And save my to-do list for another day.

 

Let’s connect, what’s up with you?

Why are you visiting today?

What can I do for you?

Can I make you happy in any way?

10th October 2015: Vyara (1)

There was a phase on Facebook requesting people to write 7 Interesting Facts about themselves that others may not know. A seemingly lighthearted trend took an unexpected turn in the face of frustration, inadequacy and comparing myself with others. Here are my 7 Interesting Facts and then some. (Spoiler alert: rules are made for breaking).

  1. My name, Vyara, means Faith. It comes from the Christian trilogy of Faith, Hope and Love.
  1. I am trained in classical music; Piano was my main instrument for 8 years. I was in a Specialist Music School and did my Music GCSE in Year 9. I was also in the choir and played the flute.
  1. I took Buddhist vows in January 2013 (refuge in the Three Jewels). I have been on a Buddhist pilgrimage to India and Nepal, worked in a Buddhist monastery under monastic leadership for a month in Beijing, China, and “ran away” with a Buddhist delegation to Europe a few days after graduating.
  1. I have travelled to approximately eight countries by myself, including China, India and Panama.
  1. The longest straight journeys I have ever taken were 27 hours on a train (Zhengzhou to Shenzhen in China) and 3 days by a coach (Bulgaria to London before it was shortened to 1.5 days). The longest broken journey I have taken was 8 days by train in India.
  1. I have met the son of Dr Martin Luther King Jr and shook his hand.
  1. I received a standing ovation for my poem titled “I Am Woman” recited at a Humanistic Psychology conference in the US.

*

  1. I have done all these despite having in the past been diagnosed with PTSD and depression, and numerous visits to hospitals for panic attacks, anxiety and more.

*

Mental health matters but it is often invisible to the eye. It is sometimes a life and death struggle and yet it isn’t recognised and understood as much as physical health conditions – its symptoms exhibit themselves different.. It is not something you can just “snap out” of.

Today, I feel empowered. I am in a very different place to where I was and I want to thank everyone who has stood by me and has made me feel better day by day and given me meaning, purpose and hope so that one day, like today, I can sit and have this conversation.

Most people wouldn’t abandon a friend after they have had a car crash that resulted in them needing a wheel-chair for the rest of their life. But they are quick to abandon people who might be crippled with mental health.

Too many people are too ashamed and afraid to seek help because of this taboo. Maybe we don’t know as much about the conditions of mental health as we could and should, and often the symptoms aren’t always pleasant to encounter, but don’t we all sometimes need to be strong for those who might be feeling weaker than ourselves? To show people, even those who don’t want to fight for themselves, that we won’t give up and will keep believing in them and fighting for them and that they don’t have less value because they may be mentally ill.

If I didn’t have the strength and desperation to feel better, and if I didn’t have access to information on the internet and the videos people upload and the encouragement and the support from friends, I really don’t know where I would have ended up.

Two years ago, I was convinced I was going to die because that was a side-effect of my PTSD. Today I can finally plan my future. Two years ago I didn’t believe I could have one.

Yes, I still have a way to go. But, to break the rules of Facebook’s ‘7 Interesting Facts’, sometimes the most interesting things about ourselves are the things we haven’t done. So here goes:

  1. I didn’t take my own life when I felt my world was falling apart every day for two years following the loss of my grandmother in a tragic accident.
  1. I didn’t screw up my life despite the fact that I lived in hostels in London for 3 years.
  1. I didn’t take heroin despite it being offered to me every night when living in a hostel and I didn’t continue to take petty drugs into my 20s.
  1. I was not discouraged from finally getting by degree by the fact that NONE of my friends in my immediate circle had ever been to University.
  1. I didn’t let binge-drinking ruin my life.
  1. I didn’t let the negative influences of toxic individuals bring me down.
  1. I didn’t lose hope and I kept living.

I am most proud of these things. I hope one day I will be able to make a difference to the world. Until then, I am happy I am still here despite the difficulties in my way. And sometimes, that is the most impressive and interesting thing anyone could say.

31st May 2015: What advice would you give to a loved one supporting someone else with your illness?

For our final post of Mental Health Awareness Month, we reveal the answers our contributors and followers on Twitter provided us in answer to the question:

What advice would you give to a loved one supporting someone else with your illness?

Be a listener. As a listener, you are more interested in your loved one than their illness. Your first response when they tell you about their diagnosis is to ask them how they feel about it. Listeners aren’t passive: you prompt your loved one when they need encouragement, but let them be when they cannot say anymore. Listeners say more with their smiles, hugs and cups of tea than they do with pieces of advice, the latest internet statistics or inspirational quotes from Pinterest. Listeners don’t necessarily understand their loved one’s condition, have the right words to say, and like anyone else, they will say the wrong thing. However, this does not matter because being a listener does not make you a therapist, it makes you a good friend.

– Anonymous

Supporting someone with my illness is difficult, you cannot fix my mental illness any more than you can fix my asthma but you can be there. Talking, listening and comforting can be really helpful but so can being someone’s happy place. Making memories and distracting me from my pain is the most helpful thing you can do.

– Claire @mentalbattle

Respect the person’s wishes. It is very difficult to talk about what you are going through because 1) it is difficult to put it in words, 2) people judge you, 3) most people don’t understand. Be there for the person, listen to what they have to say. Try to understand what they’ve told you. Advice is not always necessary, but being there and listening is.

– Anonymous

I would tell a loved one to be patient. When you’re perfectly happy and able to attend social events, to mix with other people without feeling anxious, then it’s really very hard to understand why somebody else finds it so difficult. But to them it’s suddenly become the biggest thing in the world and you just need to be patient with them and let them do it in their own way. If they trust and love you then will just want you to be there for them. Oh, and don’t belittle them and their illness. I had a few well-meaning but misplaced comments from friends which stung a little. We are perfectly fine functioning human beings, but sometimes we get lost a little inside our own heads. The support from loved ones can make all the difference.

– Beth

If you are supporting a loved one with depression and or anxiety, I’d recommend that you try as best you can to remove expectations from the relationship. They are damaging to all parties and their application can spawn ugly byproducts of mistrust, self-loathing and deep-rooted resentment. Sometimes saying nice things like ‘I love you’ or ‘I’m here for you’ can be received poorly as this can make the sufferer redouble their anxiety about why, despite, all the kind sentiment, they still feel so low.

– Dan B

To those supporting a BPD sufferer, I would say learn about the condition and get support ASPA. Great supportive literature as well as blogs, vlogs and social media exist targeted to those supporting and helping those who are supporting someone with BPD. Expose yourself to these sources. Be supported and learn from experts and those going through the same thing. Know why your loved one is acting the way they are. Learn how to support us. And do not assume that knowing love is enough. The sad truth is BPD is a complex and misunderstood condition and it can be devastating on relationships. Yet it doesn’t have to be that way. Learning to live with BPD is the responsibility of both the sufferer and the supporter. And it is my firmly held belief that when approached from a place of compassion, understanding and knowledge the affects of BPD can be fought against!

– Chama

I would recommend that you read up on what they are going through and practice active listening to what they are telling you. Extend compassion without having to collude with their thoughts. Be a beacon of positive attitude. Find anything you can to help. Practical help such as helping with cooking or helping out with the house, or job applications. Any help such as inviting out for coffee, something fun and exciting, surprises, making the person feel loved and special and they are needed and wanted in the world. Hugs and kisses, a space to cry! Be present. Be patient if they are going on and on and on about the same things over and over again. You can do this by protecting yourself with your own boundaries, self-care means that sometimes you have to say “I can’t listen to this or I can’t help you in the moment but I will be back soon.” Make sure you take care of yourself and be present positively when you can, even if it’s not often. Practice non-judgement, reassure, affirm their positives, and offer practical solutions if you are able. ASK what kind of help the person would like or need, no two people are the same. Asking what the person would like or need is the most important. If they are not able to identify it or embarrassed to ask, certainly practical help is very useful. Whether its providing a link for an interesting article or going through a self esteem and confidence building exercise together. We all go through different things, and we don’t always have the time, patience or the know how to help. Offer to go places for help with them, accompany them. With communication, education and gaining tools in your toolbox, you can achieve anything and transform yourself and your relationship in the process. Take time out but don’t give up, because most likely they have already given up on themselves. These things take time so look after yourself in the process and keep yourself happy. There is nothing like learning from good example.

– Vyara

Don’t judge by appearances. One of the biggest problems with mental illness is that it causes our outward appearance to disconnect with what we are feeling inside. Very often, we hear of suicides where everyone says, “But she seemed so happy!” On the flip side, we might see a person with a frown and a slouch standing in a corner, and we judge that person to be negative, sinister and/or weird. This was my experience. But while people judged me for my appearance, truly I was a victim of pessimism that was not my own. My heart cried out for affection and companionship, but no one saw it. Instead, people looked at me with frowns, and regarded me with dismissive attitudes. Seeing my negativity mirrored on the faces of those around me further fed into my feelings that I was not worth a dime in the bucket. Perhaps this is what people call “stigma.”

The internet truly serves as a boon in this regard. For many years, I found people to be friendlier towards me online than in person. Most likely because they could not see me! But by strengthening my friendships online, seeing people in person eventually became a lot easier.

I encourage you to try and engage your suffering loved one in a variety of ways. Heart-to-hearts in person can be helpful, but can also be anxiety-inducing and intimidating, as it was for me. Try chatting on Facebook, or writing emails penpal style. Or maybe write a poem or draw a picture as a gift. Whatever gesture you choose… it should come from a place of caring.

And always remember to remain non-judgmental and open-minded. If a friend chooses to confide in you, do not try and give knee-jerk advice to fix his/her problems. That is like putting a band-aid on an amputated limb. As much as you care, you must admit to yourself that you do not know 100% what your loved one is going through. Truly, all you need to do is listen. Offer your undivided attention. You would be surprised how seldom we listen to one another. If you listen, you might be surprised: your friend might open you up in a way you might not expect.

Be open-minded and genuine. You might help open the mind of your loved one as well, which leads to healing for not just him/her, but for you as well.

– @recoverypati

What you’re doing is great and has potentially saved your friends life. Don’t forget the illness is just a tiny part of them.

– @ZoeDodd1

 You can’t fix my #MentalIllness & my #Depression isn’t your fault. Be present, be supportive, and don’t judge. Also, supporters need to remember to take care of themselves! Don’t let my #MentalIllness become yours too.

– @BRCABrandi

We would like to thank all our contributors for their honest answers as well as our Twitter followers. This Mental Health Awareness Month, three live Q&A sessions were hosted on Twitter by @mentalbattle, @PNDandMe  and @chama_kay using the hashtag #gmAsks. We want to thank Claire, Rosey and Chama so much for their time and their wonderful work for creating discussion and conversation surrounding various mental health issues. If you missed any of these, do catch up and join in with the hashtag on Twitter. 

As ever, the Grey Matters team are looking for contributors. If you have experience, either directly or indirectly, of mental illness and would like to share something with us, please do get in touch. You can reach us at info@greymattersonline.co.uk. 

18th May 2015: What advice would you give to someone else with your illness?

For our second #gmAsks post, our contributors and Twitter followers answered the question:

What advice would you give to someone else with your illness? 

Love yourself. Often, we are our own worst enemy. So my advice is to treat yourself as you would your best friend. If your best friend came to you feeling inadequate, you would remind them of all the great things they have achieved. If they told you that they felt tired and burnt out, you would tell them to take a break and rest. You would make them a cup of tea. You would love them, encourage them and look after them. Do that to yourself.

– Anonymous 

You can handle anything for just one more day

– @BRCABrandi

 The advice I would give to someone else with my illness is to remember that everything is temporary, that feelings pass and bad days end and that one day things will be okay again. One day you will feel the sun on your skin or make a baby laugh and you will get respite from the illness. Be kind to yourself, your illness is the enemy, not you.

– Claire @mentalbattle

 There are many things I would say to somebody with social anxiety. The first of which would be, you are stronger than you think. The human mind is amazingly resilient and you really can do anything you set your mind to, whether that’s something small, like going to that party you’re dreading, or turning up at the seminar you go to every week. Or even something huge, like moving country – I’ve done all of these things and I’ve never felt so brave and so confident for doing them. And I think the other main thing I’d say is: what is the worst possible outcome? Whenever I was anxious and panicking about something, a situation or an event, I would always ask myself what the worst possible outcome could be. The answer was almost always that I’d be embarrassed, that I’d draw negative attention to myself in some way. And then I’d make myself see that, in the grand scheme of things, it wouldn’t be so bad. And that most likely the worst possible outcome would never happen. It’s so easy to get swept away in negative and anxious thoughts, and sometimes you just need to ground yourself and remind yourself that although it feels like the biggest / scariest thing in the world right now, when it’s over you’ll probably realise just how small and silly it was. Perspective is everything in social anxiety and it’s important to remind yourself what it means.

– Beth

 Depression and anxiety are conditions which are almost resistant to advice when someone is suffering form them. The galling truth of the matter is that there is no quick fix, but that is a blessing in disguise as the time taken for these illnesses to begin to heal is time when you simultaneously start to strengthen, although it might not feel like it at the time. Perspective is in short supply with depression and anxiety so I would like to impress that in very low moments, how you view the world is not in fact a lucid understanding of despair but a skewed view of a world in which, yes, despair exists, but much more besides.

– Dan B

To someone with BPD I would say two things. Firstly emotions are not bad. We seem to have too many of them too often. People are meant to feel. Emotions serve a purpose and though ours need to be controlled more than others, we are not and never have been wrong for having them. Secondly, try as hard as you can to learn what BPD is to you. Therapy, peer support, medication do all help but from my experience of all three I can say that learning my BPD has been and still is one of the most important changes I have made. By this I mean learning how the condition manifests itself in me as an individual. What my symptoms and triggers are. How often my moods change. What affect any treatment is actually having on me. I believe that though difficult, this is a vital step in learning to live with BPD. From helping direct treatment away from methods that won’t deal with your symptoms to helping maintain healthier relationships.

– Chama

Even though it may be really hard, trust in those close to you, dealing with something life changing alone is frightening.

– @ZoeDodd1

If you are suffering from depression, the best thing to do is to find someone to confide in. Find a friend, a relative, a boyfriend or girlfriend, someone who you can trust, and talk to that person. Find someone who is willing to listen to you and won’t judge you or look at you with eyes of pity. It often feels great to just talk about what you have been going through; if you continue to talk about it and begin to feel comfortable talking about it, you’ll soon be better. Also, find something fun to do! It will take your mind off things.

– Anonymous

I would say that with the right tools, faith and attitude, there is hope for the future. A future that is much better than you could have ever hoped for. I would say that you are a very strong and healthy individual to feel all the ways you feel or not feel, otherwise you would not be human. You are a strong individual for having been through and going through all the things you go through. With a little help and faith, take it by the day and EXPLORE ALL YOUR OPTIONS. There are so many things to try, that haven’t been tried yet. Even if you feel like have tried everything, changes are you haven’t! From aromatherapy, to acupuncture, to diet change, to therapy, and many others tools I have used in my tool box, I managed to survive, and so can you. Keep gaining tools for self care and healing, have faith, take it a day at a time and keep being present with yourself and love yourself. Be easy on yourself and develop a relationship with YOU. Most importantly, treat yourself as how you would treat anyone whom you really love. If you wouldn’t say it or do it to anyone you love, then don’t do it to yourself! Amen.

– Vyara

 Thank you all for your answers, and please do get involved using the hashtag #gmAsks if you would like!

11th May 2015: What’s your greatest achievement?

This week is Mental Health Awareness Week. What are you doing for it? Here at Grey Matters, we asked our wonderful contributors and Twitter followers these three questions:

What’s your greatest achievement?

What advice would you give to someone else with your illness?

What advice would you give to a loved one supporting someone else with your illness?

 

If you have any answers you would like to contribute, tweet us at @greymatters_uk using the hashtag #gmAsks

What’s your greatest achievement?

Getting a full-time job. It might seem like something most people can do, but for me it is my greatest triumph. It is more of an achievement than receiving a bachelor’s degree in music from a prestigious music conservatory, which I also have done.

I say this because… for many years, I had a burning desire to work, but I couldn’t. My struggle with schizophrenia crippled me. Even though I was qualified and intelligent enough to do my job well, I would crash. Again and again. The soul begins to wear thin after repeated failures.

Thankfully, two and a half years ago, I began a medication that radically changed my life. Since that point, I have slowly rebuilt my life, and this time my efforts have paid off! Just this past December, I was offered a job as a peer specialist at a mental health agency. As a peer, my job allows me to openly disclose my illness to our clients. Not only am I able to be open about my illness, I can be proud of my experiences. They are seen as a strength, and I have become a source of inspiration to my clients. I share my successes with them, and give them hope that they too can recover and live the lives they want for themselves. This feeling of satisfaction… getting to this point is truly my biggest achievement.

– @recovery_pati

To answer it from a generic perspective – thus far my biggest achievement is my A-level grades. I know I could have gotten better grades; however, with my mother being hospitalised whilst I was doing my A-levels, my family getting kicked out of our home a month before my exams, and many other issues, I was able to get the best grades in my sixth form.

– Anonymous

My biggest achievement is not taking my own life and getting past the point of wanting to. Most importantly, since then my biggest achievement is that I have found hope and purpose for the future, belonging, optimism, relief, peace, fulfilment and joy in the present.

– Vyara

My biggest achievement has been helping others, even when I sometimes can’t even help myself.

– @BRCABrandi

Overcoming the debilitating anxiety that came alongside my postnatal depression. During the worst periods of this I was unable to leave my home, I was frightened to leave my ‘safety’ zone and would have panic attacks regularly. I’ve practiced and followed the advice I received from my local perinatal emotional wellbeing service. It’s taken a lot of practice, patience, and being kind to myself but by challenging my fears I have been taking back control. I am now able to leave my home much easier, my anxiety has reduced and panic attacks are less. I never believed I could get to where I am today.

– Sarah @LotusPetalPND

I think my greatest or should I say proudest achievement has been to become an advocate for men’s mental health and BPD awareness whilst learning to no longer be ashamed of and fear my condition. This is a deeply personal victory for me, as one can imagine.

But I take the most pride in bringing these issues to light for people who are or were once unaware. The devastatingly inadequate state of mental health services in today’s Britain needs to be addressed and understood. As does the manner in which the men of this country are being lost in the system as well as in the ideals of ‘manhood’ held up by wildly outdated value systems. As of yet, I am not knocking on the doors of politicians and policy makers to get them to right these wrongs, though one day I hope to be. But as someone who has felt a deep shame and worthlessness and someone still learning to live with BPD and the stigma of a mental health diagnosis, it gives me great satisfaction when people, strangers, loved ones and otherwise, tell me that they relate to or have learnt from my testimony. The responses I have received from my articles and personal blog posts have kept me believing my work is important even at times when I have been tempted to abandon the cause. Comments, feedback and replies to tweets, Facebook statuses, poems and spoken word performances have energised me when I am at my lowest.

But nothing is more touching than seeing people around me start to talk about mental health and BPD. I do not take full credit for discussion on these subjects amongst my peers. But I do believe I have used my voice to hopefully allow others to both feel less isolated and find courage from the darkest of places, for even a whisper in this deadly silence can be life saving.

– Chama

It is interesting that my knee-jerk reaction to this question is a material or tangible answer. Something relating to my CV, something you might give in response to the dreaded ‘tell me something interesting about yourself’ question. But upon further reflection my biggest achievement has been mundane. It has been setting myself up in a foreign country. Through a combination of luck and hard-work have found myself in a situation where I am surrounded by people that I care about and have built a home on the other side of the world.

– Dan B

Writing a book. It’s everything I’ve ever wanted to do and I’m so proud to have achieved it. Now just the small matter of getting it published…

– Beth

My biggest achievement is being alive. I have not achieved this by myself and I am sure that without the help of some of the amazing people who have been a part of my life that I would not be typing this now. There were so many times that I could’ve chucked in the towel and didn’t. I am alive, I’m not just an existence hiding in a house, people know about me, people want to be around me and I want to be out and about and participating in the world around me. I would never have believed that this was possible when I was laying in the psychiatric ward on constant observations but it is possible and I have got there.

– Claire @mentalbattle

My natural tendency would be to choose of one my academic accomplishments as my biggest achievement, but I guess having depression kind of puts things in perspective. When you are being plagued with thoughts about guilt, worthlessness and purposelessness, those A*s at A-level and those achievement awards lose significance. So instead, I think my greatest achievement is choosing to still believe. To still believe in God, in a future, in hope. Because despite all that I have gone through, I woke up this morning and I was able to say “Thank you that I am here”. Every day that I can say that, I have achieved something great.

– Anonymous

Thank you to everyone who sent us your honest and open answers. If you have anything you’d like to contribute for the next two posts, do email them to us at sara@greymattersonline.co.uk or tweet us! We’d love to hear from you and find out what you’ll be doing for #MHAW2015.